Reynauds and RSD

So it's been awhile since I updated everyone with the comings and goings of what goes on here......so here goes...

Well we are getting closer to getting answers.....We know that Damon has RSD (Reflex Sympathetic Dystropy) also known as CRPS type I and II. His newest and BEST doctor we have seen is a Pain Management doctor and he has also diagnosed him with Reynaud's disease. It is a disease of the circulatory system where his hands and feet are cold, they get red and blue blotchy and it's very painful. I'm sure you can google this and find more info about it. There is much more than what I described but I don't feel like typing all the medical jargon.

He's been on a cycle of pain meds for several months now, this doctor is phenomenal. He switches the meds out every other month or so to avoid the addictiveness and it helps. He has him on some good sleep medicine too so that helps. Next month he is going to a neurostimulator specialist and they are going to put peripheral leads into his ankles and place them directly on the nerves affecting certain parts of his feet, then they will tunnel the leads through his calf and place the actual stimulator under his thigh muscle. This has to be done on both legs. Then they will go in and put leads into his wrists affecting his hands with the leads tunneling through his bicep muscle leading to the stimulator behind his chest muscles...This will have to be done to both sides as well, with one battery pack running both stimulators for his hands. The specialist said this approach will work better since his pain is in certain areas and he won't have the issues he has now with his current stimulator and it not working how it needs to work. They will be taking his current stimulator out and using that as the battery pack for the ones they will place in his hands....so it sounds like a lot but the doctor says this is all done as outpatient surgery! Technology is amazing!

So we keep on going, keep hoping that this will help with some of the pain. At this point, a little relief is better than no relief right?

We keep fighting the good fight, now I just wish the VA would step up and do their part, YEP still waiting.....I hope that all this time waiting will pay off in the end.

I hope this has answered some questions, google those things above and it can give you more then enough information....there is so much out there!

Hugs to everyone!